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The Electronic Directory for People with Spinal Cord Injury "Because no one should cope with a Spinal Cord Injury (SCI) alone" |
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Paralinks Archives features
spinal cord injury related memoirs,
inspirational
articles and
other publications pertaining to spinal
cord injuries.
Quadriplegic sailor Hilary Lister sailed round Britain single handed. Watch the Video of Hilary Lister explaining how she does it
Martin Conquest - The Conquest is the world's first series-manufactured high performance motorcycle that can be driven from a wheelchair. The vehicle provides a level of performance and independence previously unattainable.
A cool Robotic arm to assist those who drive and transfer from their wheelchairs.
...a dream... - Paraplegic Marc Merger knows his dream of strolling through the countryside on a sunny day will remain just that....
A journey with Justin Hines YouTube - Documentary Short
A Must Read! - Clinical trials public guide 2007. pdf file (This document was provided by kanderso@uci.edu
Abuse and SCI - A Cautionary Tale - An article from New Mobility magazine (March, 1999) that discusses the facts that abuse makes individuals vulnerable but that it is not necessary to be a victim. It encourages telling someone of the situation and getting help.
Accessible Air Travel (PDF) - Although air travel today is available to most people, barriers to access still exist. A passenger with a disability may encounter obstacles just to reach an airplane seat. It is vitally important for travelers with disabilities and their companions, travel agents, and others involved in air travel to know what to expect from the time an airline reservation is booked to the moment the flight touches down.
Accessing Local Government (PDF) - Participatory government is at the foundation of the social and political structure of the US, but many Americans with disabilities are denied the opportunity to share in their state and local governments. Discriminatory hiring practices and inaccessible public buildings prevent persons with disabilities from participating in their government. Learn how to access state and local government to initiate change.
Adaptive equipment -A wide array of equipment and devices used to accomplish more ADL activities and become more functionally independent.
Africa in a wheelchair? - Why Ethiopia? Writing by Gordon Rattray
Aging and SCI - The changes in one's independence brought on by a spinal cord injury that require the need for assistance. It covers issues of self-esteem and accepting help after SCI and how this can change as one ages.
Aging with Spinal Cord Injury Until very recently, there has been little research particularly designed to study aging in people with spinal cord injuries.
The Americans with Disabilities Act (PDF) - Many regard the ADA as the most sweeping piece of civil rights legislation since the Civil Rights Act of 1964. Others believe that because of the many structural and communications barriers the ADA will remove, it is the farthest-reaching civil rights law ever enacted.
Angelo Suriano ignores the penetrating cold as he sits on his plastic sled, using his arms to shuttle among his 18 dogs. He rubs their noses and ears and soothes their excitement with a calming voice, individually showing them his devotion.
Barry McKeown - From his wheelchair, has connected IV bags for accident victims, monitored heart rates in the intensive care unit, counseled geriatric patients — saving the life of one with emergency CPR...
Beneficial Designs works towards universal access through research, design, and education. We believe all individuals should have access to the physical, intellectual, and spiritual aspects of life.
Bladder Pacemaker? - I have wanted one of these from the moment I heard of such a thing! -Gary
Bill Brennan - Drinking and Driving: Better Think Twice
'Birdman of Niagara Falls' - Battles Bureaucracy Over State Park Access By David Staba
Bonzai Monk - Why'd I write this letter??? I don't really know why ...but lets just say for the last 11 years I've lived in a town with not one person I know of but me in a chair......11 years and I'm finally bored...........11 years and this is the very first time I've been to a website looking for Brothers or Sisters to bond with......What am I missing??? What is there out there yet?? I need to get involved my attitudes kicking my butt now.
Born Lucky - It was said that he was born lucky, or it may have been fate, whatever, this account of a period of time in a mans life lets us know that it can happen, there is always a chance, no matter how slight, that a prognosis of being 'completely paralyzed for life', could be incorrect.
BrainGate - If people with physical handicaps could control a computer by just thinking, they could also operate light switches, television, even a robotic arm -- something the 160,000 people in the United States who can't move their arms and legs would surely welcome. From Wired!
Clayton Lewis - A Cure is coming... One of the refrains that I kept hearing during my rehab was that a cure is coming... they are figuring out the human Central Nervous System and that a cure is on the way. The best estimates are that within 15 to 20 years there will be a cure. I was also told that the best way to be ready for the cure when it comes is to stay in shape and take care of yourself. When you think about it, that advice is really just simple common sense. -
Chava Willig Levy - Wheel of Misfortune? As a person who gets around in a motorized wheelchair, I've always considered television my friend. After all, it kept me company during many long and lonely stints in bed, both at home and in the hospital. Maybe it has something to do with getting married seven years ago, but now that my stints in bed are no longer lonely, I've become more critical of my old friend. In fact, there are times when I view television as my enemy.
Christopher Reeve Device Inspires New Strides
Curtis Neeley - Photographer/Paraplegic Earth Eye Images
Dancing Wheels based in Cleveland, will train eager, athletic men or women wheelchair users to work as apprentices with the company.
Disability Etiquette (PDF) - You don’t have to feel awkward when interacting with, or when you meet, a person who has a disability. This booklet provides some basic tips for you to follow. And if you are ever unsure about what to do or say with a person who has a disability, just ask!
Dreamfit: the motorcycle for paraplegics - Started as a university project, the Dreamfit CBR250RR has been modified to suit riders paralyzed from the chest down, with thumb-activated pneumatic rams for foot-free gear shifting, a combined braking system, custom-moulded ergonomic cups to hold the rider in place without any lower body strength, and a set of steel-braced "landing gear" wheels that drop to provide stability at very low speeds.
Elisa Terranova Artist Extraordinaire - An automobile and train wreck left Elisa a paraplegic in 1980
e mails from the edge - Sixteen years ago, Australian journalist Ken Haley was working at a local newspaper in Bahrain when his own world caved in....he survived, even though the cost of jumping out a window was that he is now a paraplegic. Page up-dated 02.22.07
Every 41 minutes another person sustains a Spinal Cord Injury (video) - Paralinks: WheelChair Nation
Exercise - An article by Craig Hospital Research Department from their SCI Health and Wellness series that discusses ways individuals with SCI can use exercise to improve flexibility, increase strength, increase endurance or aerobic conditioning, or improve body shape.
The Fair Housing Amendment Acts (PDF) - This law is intended to increase housing opportunities for people with disabilities. However, individual citizens must come forward with concerns, file complaints or sue if they believe their rights have been violated. The government has no other way of detecting discrimination as it occurs. As a result, it is important to understand this legislation and how to make it work for you
Fishing from a wheelchair - Special method for a quadriplegic - The concept is a way for quadriplegics of level C5 or lower to have the ability to go fishing using only their physical strength, coordination, and dexterity – no electronic devices.
Flying Wallenda - a Paraplegic, readies for a comeback.
Free Wheelchair Mission - Twenty Five years ago, the sight of a crippled Moroccan woman crawling across a dirt road planted a seed that germinated in 1999 when Don Schoendorfer, founder of Free Wheelchair Mission, invested his education and professional expertise as a PhD Mechanical Engineer to create a simple, rugged, and inexpensive wheelchair. The mental picture of the crawling woman's anguish and loss of dignity had haunted him for years until God opened a path for Dr. Schoendorfer.
From Big Air to Wheelchair -Trevor Snowden By Taylor Flynn
Future-Link - The future is not what it used to be? A unique Web Site for musicians who happen to be disabled.
The future solution for wheelchair users and taxis? Standard Taxi Compan.
God's Grace and Protection - Peter van Kan Even though there have been no grand, divine visions in my life, no moments in which a resounding inner voice told me, "Go, do this Peter," there have been many, many ways in which God and Guru have let me feel their presence and protection. A serious car accident in 1979 landed me in a wheelchair as a paraplegic. On first impression, this may not seem to be a wonderful example of divine protection, yet, it has given me so much on many levels that I now consider that experience to have been one of the greatest blessings of my life.
God's perfect will - Mysteriously, there seems to be a transforming effect on being afflicted. Such experiences are life-changing and soul-altering in the deepest of senses. The combination of boredom and physical suffering squeeze and challenge the soul like a precious gem forged in the unbelievable forces within the earth’s mantle that can lead into profound heights of understanding, realization, and, in the long run, inner peace. -Pointe'a
Grace of My Heart has written articles for the Paralinks Sexuality & Spinal Cord Injury page over the past five years. This from Grace: I've been a C5-6 complete quad for 21 years: I had a diving accident at the age of 14. At first, I had no idea if I would be capable of experiencing sexual pleasure. And, of course, I didn't get any information about it from the rehab hospital at that time. I probably wouldn't have been ready for it anyway, since I was just beginning to experience puberty, and adjusting to life as a quad was hard enough on my self-esteem. Fortunately for me, there was a bright shining light at the end of the tunnel! -Grace
Growing Village Pavilion - Tree Climbing Japan was founded by John Gathright with the dream of helping a very special paraplegic woman leave her electric wheelchair and climb the biggest tree in the world. WOW!
Guide Dogs, Hearing Dogs, Support Dogs, Service Dogs, Companion Dogs - All the information you need about service dogs.
The Happiness Threshold or Quotient by Ian Boyne; Phillip Brickman interviewed accident victims, who had become quadriplegic or paraplegic and found that they did not experience any significant difference in their happiness quotient after their tragedy. What is your take on this?
Handicap-Accessible Street Rod By the Monster Garage.
Have you even heard of the Vagina Monologues? We post this here because of the honest and need to know information about women's sexuality that most men are unaware of. (off site link)
Heather Proud - Dis?Ability on the Internet Over the past twelve years I have learned much by working, counseling, socializing, studying, advocating, observing, playing, and interacting with individuals with disabilities (IWD). It is still amazing to me that I have adjusted to being paralyzed for over half of my young life, and yet I feel so fortunate to have a good quality of life.
High Flying Paraplegic! Russel Metlitzki flies...
High School Junior Nicole Deegan By Brian Ojanpa: Nicole holds a unique distinction as a high school danceline member: She's paralyzed from the waist down.
Hire Heroes ATLANTA – June 1, 2007 – a program designed to help veterans with disabilities find careers in the healthcare industry, officially starts operation today.
The history of the wheelchair - A fascinating look into the past and future of wheelchairs.
Human Engineering Research Laboratories - interested in wheelchair design or the effects of long term use of wheelchairs on the human body, the use of Dogs to Increase Function and Psychological Well-Being Among Wheelchair Users, or Dynamic Force Distribution at the Body-Seat Interface During Wheelchair Propulsion; this site is for you! See our Introduction to HERL peek into what the Human Engineering Research Laboratories is all about.
If You Believed In God You'd Still Be Walking by Mark Hanaway
I'm an L-1 Paraplegic and have been one for almost 30 years. As this body aged, the buttocks lost their meat & muscle and eventually I was sitting on bones and nerves every time I sat on the toilet. Needless to say this caused pain. I tried many types, brand names, and various styles both store bought and hand made by myself using assorted foams duct tape and glue. That perfect toilet seat was in serious hiding. Up Until Now!
Implanted electrodes - Scientists have helped a 'partially' paralyzed man walk the length of three football fields by implanting electrodes in his spine.
IN ETHIOPIA WITH A WHEELCHAIR? Gordon Rattray.
Jeff Haworth, Visionary Artist, founder of Reality-Ize and brother paraplegic. I met Jeff several years ago while my spouse and I were visiting Sedona Arizona. Our meeting was brief, but we were impressed with Jeff's maturity, sincerity, and vision for such a young man.
Jen Longshaw - Where Did Our Love Go?
Jen Longshaw - Zen and the Art of Wheelchair Maintenance A civilized society can be judged by the way it treats its weakest citizens and when it's most vulnerable members are the disabled then even more so. So why is it that the very people put in charge of supplying care to that sector of the community are often the worst possible choices?
John Hockenberry - The story of the most fearless entrepreneur ever: The human brain. When you think disability, think zeitgeist. I'm serious. We live at a time when the disabled are on the leading edge of a broader societal trend toward the use of assistive technology.
Judie Moffett - Paraplegic on a mission to help others in similar situations
Keegan Reilly - A man who lost the use of his legs in a car accident seven years ago refuses to see limits in life; had one unexpectedly plunked down in front of him last week as he was attempting to become the first paraplegic to climb Mount Fuji under his own strength. -By Yumi Wijers-Hasegawa
Letters from the Edge - J. Michael Kanouff's Web Site is now offering his new book. A must read.
Matt Bell - Ski Patroller - Paraplegic; by Heather Burke
Matthew Sanford Paraplegic Yoga Instructor - Paralinks posted an article about Matt way back in August 2004; see where Matt has progressed to. New article by Kay Harvey
Mark Hanaway - The Sex and Dating Scene My Personal Thoughts on the Sex and Dating scene By . At the age of twenty when I first had my injury, like most men I was very concerned about my sex life. I had been dating someone for a couple of years and it was an important part of our relationship. While in rehab, quite often I would get an erection simply if the wind blew. So I thought things hadn't changed much. What was very different was the fact that I could be mentally or emotionally aroused but not physically and physically aroused but not emotionally.
Michael Brady - Trapped paraplegic drags himself through Prairie snow 02 Jan 2003
Mind Body Solutions - Matthew Sanford Paraplegic Yoga Instructor
Mind Over Body: New Hope For Quadriplegics
Miracles on a Mountainside: More than 400 disabled military veterans from across the country are scheduled to attend the 21st National Disabled Veterans Winter Sports Clinic (WSC) April 1-6 in Snowmass Village, Colo. (near Aspen). This is truly a unique and incredible event (with amazing visuals). With veterans coming back with disabilities from Iraq and Afghanistan, highlighting their abilities in this national rehabilitative event (adaptive skiing, sled hockey, scuba, shooting and more) is a very timely and relevant story.
Musicians Who Happen 2 B dis-Abled: - The Healing Powers of Music & Rhythm: a unique directory of musicians who happen 2 B dis-Abled.
Murderball - Quadriplegics kicking the crap out of one another in the name of sport? Welcome to the 2002 Wheelchair Rugby World Championships in Sweden.
My Second Life by Foster Andersen: Life is a constant transmutation between positive and negative polarities such as success-failure, ugliness-beauty, pain-pleasure, and mobility-immobility. If we continue to challenge ourselves throughout our lives, consciously expanding our personal world, all changes can inspire our creativity and transformation.
Newlyweds work to save marriage after war leaves him paralyzed Jennifer C. Yates
NoPityShirts Ricky Buchanan sells disability-related and motivational gear, primarily T-shirts... a powerchair user, disabled with a genetic condition known as EDS and also with severe ME and Fibromyalgia.
North American Riding for the Handicapped Association, Establishes Horses for Heroes
Opening doors in parks by Austin Fenner; Victor Calise takes a direct approach to tackling life's hurdles; "Just because you are in a wheelchair, it doesn't mean your life stops..."
Paper: A university student writes about Functional Electrical Stimulation (FES) - how does it aid the rehabilitation of spinal cord injury.
Parking Pads (PDF) - Have you ever discovered someone illegally parked in a handicapped zone and wished you could say or do something? Now you can! Take action with our handy “Just a Minute…” is 60 Seconds too long parking pad. Simply slip one of these informative reminders under the offender’s windshield wiper and you’ve made your point.
Peter van Kan is a yoga teacher, musician, writer and paraplegic
Planning Your Will (PDF) - By using this step-by-step guide, you will see how planning your will can save money for both you and your heirs. You will also find out how meaningful and rewarding a process it can be for you.
Power Paws - Now is the time to apply for an Assistance Dog!
Quadriplegic lives independently with Angel ECU (Environmental Control Unit)
Rex Donald - Disabled or Not “Find That Hidden Job!” No matter who you are, finding employment in today’s job market is difficult. The competition for jobs are fierce. For each advertised job opening there are dozens or even hundreds of applicants.
Scott Chesney - Life Enhancement Coaching
Scouring the Globe for a Cure: A Disabled Man's Experiences with Stem Cell Treatment. We can say with certainty that if your or a loved one is thinking about or planning a trip to other countries for a cure; you must read this book
Sean Scott: The Story of A Paraplegic flying a weight-shift Trike.
Set Your Heart On Fire by Grace
Sexual pleasure for woman with SCI by Grace
Sexuality of One Paralyzed Man: Sex does exist after paralysis Gordon has written this accounting of the early years of his paralysis and his maturing sexuality. He told us here at Paralinks that before he was a paraplegic he was a macho dude and did not give much thought to how either his wife, when he was married- or his later girlfriend- felt about their sexuality. Note: Gordon's letter is graphic and explicit. If you are embarrassed by sexual frankness-- perhaps pass this letter by. -ed
Shared Adventures - "Our bodies might be broken, but we’re still out here doing stuff." -Marv Tuttle
Smoking - You most likely have heard all the reasons to stop smoking; lung cancer, heart disease, emphysema, shorter life expectancy...
Spinal Cord Injured American Indians have tough time on reservations. By Daniel Kraker
Stay Safe: Preventing Spinal Cord Injury (PDF) - Not many people believe they can become a statistic of spinal cord injury; however, it happens every day. It is important to know that spinal cord injury can happen to anyone at any time. There are some protective measures you can take to avoid getting a spinal cord injury.
Still Me Voyage - Paraplegic canoes 1,000 miles of MacKenzie River solo
Taking Action (PDF) - The information contained in this pamphlet is designed to enable you to become an effective self-advocate. A self-advocate is someone who is actively involved in getting what they want. As advocates for organizations can attest, advocacy is a process.
Taiwan's Fiesty First Lady is a Paraplegic
Todd Brown: Determination & serving others equals Success By Kieranne Kramer
Trikes or Trykes? - Two Paralyzed Veterans, Terry McGovern & Louis DuPilka, put their mark on the world of motorbikes. By Dianne Renzulli the public affairs assistant for the Eastern Paralyzed Veterans Association. Enough information and resources to build your own!
Vagina Monologues - Grace writes about her take on the Monologues.
Vehicle Conversion nightmare for Paraplegic
Video: Molly and Jeramy "Relationships, Sexuality and Spinal Cord Injury." This new video is an excellent resource for rehab centers, patient education, nursing and medical schools. This is what the label says. We viewed it last night and highly recommend it for married couples who have had the unfortunate fate of one of them suffering a spinal cord injury. The film takes an intimate and honest look into one couples life after the woman is paralyzed as the result of an auto accident. This film shows that there is married life after SCI! There really is hope. If you know of a couple in this situation please get this video from Aquarius Health Care Videos (or http://www.aquariusproductions.com)
Vinny Lauwers a 32-year-old paraplegic, sailed into his home port of Melbourne last Saturday, ending an eight-month epic journey that saw him become the first paraplegic to sail non-stop, solo and unassisted around the world.
What is SCI/D? (PDF) - This brochure is a general introduction to SCI/D. Understanding what a spinal cord injury is and what diseases affect the spinal cord is not only the first stage of rehabilitation, it is also an important key to prevention.
Wheelchair Stunt-Man - Gary Schooley from Paralinks recently caught Trevair Snowdog during a break in his wild life. Catching him while he was on the ground, Gary took this opportunity to interview the 'Wheelchair Stunt-man'. If you have not heard of Trevair yet, I am sure that you will.
WheelchairNet is a community for people who have a common interest in (or in some cases a passion for) wheelchair technology and its improvement and successful application... a virtual community... a community that exists only in "cyber space." Cyberspace is a way of referring to the Internet. It's a community organized along the lines of a real town. This virtual town is inhabited, visited and managed by people who have an interest in wheelchairs and how wheelchairs can best serve the needs of people who use them.
Wheel Travel Canada by Jane Danielson
Who is Wise Young? - Wise Young is recognized as one of the world's outstanding neuroscientists.
Winfield Clark - The experiences of a long-term paraplegic with long-term Buddhist practice. Brief personal history. Overview of Buddhist philosophy. The practice of sitting meditation. Meditation practice and the disabled.
Women With Disabilities Australia: The Wheelchair as a Vehicle for Empowerment and Community Development.
Women’s Health (PDF) - For many women with spinal cord injuries or disorders (SCI/D) knowledgeable physicians and the right facilities are often hard to find. Use this checklist, not only for your own personal information, but also for educating your primary health care provider on what he or she needs to know about the unique needs and concerns of women with SCI/D.
Working it out - Voc Rehab program gets people back into employment arena. By Melanie M. Sidwell
Why drive a mini van when you can have the same functionality but with the hauling and towing capacity of a truck? All New Ryno Mega Conversion
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wheelchairnation@sc.rr.com with
questions or comments about this web site. Copyright © 2007 by WheelChair Nation. All rights reserved. |
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