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Dis?Ability on the Internet
Over the past fourteen years I have
learned much by working, counseling, socializing, studying,
advocating, observing, playing, and interacting with
individuals with disabilities (IWD). It is still amazing to
me that I have adjusted to being paralyzed for over half of
my young life, and yet I feel so fortunate to have a good
quality of life. I am excited and interested to learn about
the Internet the ways it has opened up vast new worlds to
IWD by greatly increasing our interactivity and
functionality in the world. We are using the Internet to be
productive in countless creative and therapeutic ways.
People with disabilities face
an ongoing and unique set of issues & challenges that many
able-bodied individuals do not understand or are even aware
of. As a person living with a disability for the last 20
years, I have gained tremendous experience & insight with
the daily problems IWD face on so many levels. I've worked
in the local disabled community for many years as an
advocate, fund-raiser, peer counselor, educator, case
manager, & as director of a small spinal cord injury support
group. From this experience I have learned about these
challenges: physical, emotional, mental, spiritual, and
economic.
The physical challenges vary
widely for every individual, according to their disability,
from those who can live independently to those who are
completely unable to take care of their physical needs. The
physical limitations may not be obvious when you see some
one in a wheelchair, yet even someone who is independent
will generally find some thing in the "able-bodied" world
which is a barrier to their accessibility. Even two or three
stairs into a building or home means an individual in a
wheelchair is excluded. In addition to the obvious barriers
there are also hidden physical problems (such as chronic
pain) which can make participating in ordinary life very
difficult.
We all face mental, emotional,
and spiritual issues as we live out our lives (karma). We
struggle with our inner conflicts and the need for love and
acceptance from our world. For the individual with a
disability, many issues such as self esteem, optimism, and
faith in ourselves, god and our fellow humans are much more
challenging. One reason for this is the physical
separateness which leads to loneliness and a feeling of
personal isolation. Relationships, both personal and
romantic, become harder when the individual with a
disability has so many needs. It can be overwhelming to a
partner, making it more difficult to create and maintain
healthy romantic relationships. Marriages often fail after
disability occurs.
Adding to the personal
physical limitations, an IWD faces societal limitations in
order to be successful and reach their goals financially,
educationally, professionally, and creatively. Not only are
their fewer jobs and professions which IWD can participate
in, there is often an inability to accommodate their needs.
On the brighter side, advocacy groups, individuals and
family members have brought about the Americans with
Disabilities Act and have been dramatically increasing the
overall awareness of the need for accessibility,
accommodation and integration of IWD into mainstream life.
The Internet has also changed
and expanded IWD capacity to function in the world. A wide
variety of assistive technology devices have been developed,
creating easy access to both computers and the Internet.
Unfortunately these devices are still very expensive and
continue to disenfranchise a large percentage of the
disabled community who cannot afford them. I have been
lucky. After researching what is available and what would
make it possible for me to continue my education (and become
more employable), I received a state of the art computer
system from the State of Hawaii that allows me, as a
quadriplegic, to go to school. I have never had a computer
before or spent more than a couple hours on the Internet at
a friend’s house. My experience with this class over the
past two months has shown me the incredible vastness of
information and interactively that one can experience while
on the net. I’ve come to realize that for IWD that this
nonlinear and discontinuous environment offers amazing
freedom. The Internet is exceptionally supportive to those
IWD that have always experienced so many limitations in the
able bodied world. It’s like a bright new window into a room
that traditionally has been very dark.
In a disabled person’s world,
the concept of space & time is very different. Most are
often unable to devote the large chunks of continuous time
that our society demands of it’s participants in
employment/school/social settings. I personally cannot sit
comfortably in a wheelchair for more than a few hours at a
time. Until recently, I have not been able to "work" because
of this. The fact that the Internet opens up new
possibilities to work and go to school from one's home is an
outstanding development for the disabled community who have
been waiting a very long time for just such an opportunity
to participate in mainstream/cutting edge life.
The Internet not only creates
quality business/educational connections, but also healthy
personal support systems. Networking through the Internet
allows thousands of connections to be made which enhance our
awareness that others are coping with the same situation.
Knowing that someone is out there to talk with about a
variety of disability issues, helps ease the sense of
isolation. A feeling of belongingness counsels loneliness.
The disabled community has a strong presence on the Internet
with numerous chat rooms & news groups available to discuss
the issues. I’ve been exploring now for 2 months and still
feel that I have barely scratched the surface of what out
there. I want to know more!!
Individuals with disabilities
are using the Internet to produce better lives for
themselves both personally and economically. Many of these
individuals have websites. They are sharing their personal
stories of how they became disabled and how they have
adjusted and accepted living with their disability. Their
stories are inspiring and poignant. These people are
addressing their issues and challenges in positive ways that
encourage excellence within the global disabled village. By
doing this they are an inspiration to others and are able to
express their own personal creativity. This information is
particularly helpful to people who recently have become
disabled.
As I
have been writing this essay, my awareness of IWD on the
Internet has been radically broadened; a learn as you go
project. It has been enlightening and inspiring beyond my
imagination. The Internet in no way takes away from my
personal real life interactions, but has enhanced and
expanded my perspective of the unlimited possibilities and
opportunities in the virtual world!!! ---Heather Proud
injoy@hotmail.com
Reproduced in Paralinks with the
expressed consent and approval of the author